“Yaqin” begins the healing journey by receiving the first dose of “Zolgnma”

After His Highness Sheikh Mohammed bin Rashid Al Maktoum, Vice President and Prime Minister of the UAE and Ruler of Dubai, may God preserve him, sponsored the treatment of the Syrian girl, Yaqin Ibrahim Kanakir, who suffers from spinal muscle atrophy, the child received, on Friday morning, the drug “Zolgansma” at the Children’s Children’s Hospital, affiliated with “Dubai Health”.

Square underwent a treatment in one intravenous dose of the drug, which is the most expensive in the world and exceeds the cost of seven million dirhams, and it is one of the advanced genetic remedies that gives children with spinal muscles atrophy a real opportunity to restore their kinetic abilities at an early age.

The procedure took about an hour, and it will be followed by a medical control program that includes periodic visits to oversee the improvement of its health.

Al -Jalila Children’s Hospital, the first hospital in pediatrics at the state level, revealed that treatment for more than 100 cases of spinal muscle atrophy within five years, as the first case she received in 2020 was a five -month -old girl.

The Executive Director of the Women and Children’s Health Council in Dubai Health, Dr. Mohamed Al -Awadi, stressed that the provision of treatment for more than 100 cases of spinal muscles at the Jalila Children’s Hospital reflects the commitment of Dubai Healthy to provide high -quality care that takes into account the best standards for each child.

He said that “Dubai Health” adopts an integrated care model that meets the needs of the patient from various medical and humanitarian aspects under one roof, and this model covers the care path from the moment the patient enters the system until the completion of the treatment plan, ensuring the provision of the highest levels of comprehensive health care.

He added that «the condition of the child is certain that embodies the effectiveness of this model, which combines multidisciplinary teams, and ensures the best possible medical care for children who suffer from complex cases, such as spinal muscles.

In turn, a consultant for children’s rehabilitation at the Children’s Hospital, Dr. Haitham Al -Bashir, explained that the drug «Zolgansma» is one of the advanced genetic treatments that give children with spinal muscles atrophy a real opportunity to restore their motor abilities at an early age.

He emphasized, “Receiving the certainty of this treatment within a comprehensive medical plan, under the supervision of teams from various medical specialties in Al -Jalila Hospital.”

He added, “We will continue to follow up on her condition, to ensure the best possible results. Due to the difference in the nature of each case, we adopt an individual approach that takes into account the special needs of each child. ”

For his part, the father of the child, Ibrahim Kanakir, expressed his deep thanks and gratitude to His Highness Sheikh Mohammed bin Rashid Al Maktoum, to guarantee him by treating his daughter from her rare genetic disease.

He said: “We do not feel that we are outside our homeland. The UAE embraced us as a family, and it stood by our side as no one did.”

The child’s father stressed that “the start of treatment represents a new beginning for life, and a point that turns from fear to hope,” adding: “I did not taste the taste of sleep from the intensity of my joy, as our hearts were filled with hope, after despair filled her, and for this I did not believe that my daughter will start the journey of her treatment after we went through it.”

The father continued that «the initiative of His Highness Sheikh Mohammed bin Rashid Al Maktoum saved the life of my daughter, and returned hope to our hearts … We will not forget this beautiful what we have lived.

He praised the medical cadres at the Jalila Children’s Hospital, saying: “Everyone in the hospital dealt with certainty as if she was his daughter.

The mother of the child, Haifa Abdulaziz Farouj, said: “What happened with certainty is beyond description. Since her birth, I live every day in anxiety and fear, and today only I felt that we entered the real hope stage. I did not imagine that a day would come when I see sure to receive treatment from the most rarest treatments in the world, but the honor of His Highness Sheikh Mohammed bin Rashid Al Maktoum gave us a new life.

And she added that «the UAE was not just a country that we resort to, but rather a homeland that opened its heart for us, and embraced our daughter in the most difficult moments.

The mother thanked the medical team at the Jalila Hospital, saying: “Every doctor and nurse here looks at the certainty of the mother and father, and this alone is sufficient to feel that my daughter is between honest hands.”

• A medical follow -up program that includes periodic visits to oversee the improvement of the health condition of “certainty”.

The father of “Yaqin”:

• The initiative of His Highness Sheikh Mohammed bin Rashid Al Maktoum, saved my daughter’s life.

• The cost of “certainty” treatment exceeds 7 million dirhams .. We did not have the lowest ability to provide it.

The mother of “Yaqin”:

• Since the birth of “certainty” and I live in anxiety and fear, and today I just felt real hope.

• Everyone in Al -Jalila Hospital deals with certainty as if she is his daughter .. This treatment has relieved us.