The Syrian girl “Yaqin” receives genetic therapy “Zolginsma” at Al -Jalila Hospital in Dubai

After His Highness Sheikh Mohammed bin Rashid Al Maktoum, Vice President and Prime Minister of the UAE and Ruler of Dubai, may God preserve him, sponsored the treatment of the Syrian girl, Yaqin Ibrahim Kanakir, who suffers from spinal muscle atrophy, the girl received, on Friday morning, the drug “Zolgansma” at the Jalila Children’s Hospital of “Dubai Health”.

The girl underwent a treatment for a single intravenous dose of the drug, which is one of the advanced genetic remedies that gives children with spinal muscles atrophy a real opportunity to restore their motor abilities at an early age, and the procedure took about an hour, followed by a medical follow -up program that includes periodic visits to oversee the improvement of its health condition.

Al -Jalila Children’s Hospital, the first hospital in pediatrics at the state level, revealed that treatment for more than 100 cases of spinal muscle atrophy within five years, as the first case she received in 2020 was a five -month -old girl.

Dr. Mohamed Al -Awadi, Executive Director of the Women and Children’s Health Court in Dubai Health, stressed that providing treatment for more than 100 cases of spinal muscles at the Children’s Hospital reflects the commitment of “Dubai Healthy” to provide high -quality care that takes into account the best standards for each child.

He said: “We adopt in” Dubai Health “an integrated care model that meets the needs of the patient from various medical and humanitarian aspects under one roof, and this model covers the care path from the moment the patient enters the system until the completion of the treatment plan, ensuring the provision of the highest levels of comprehensive health care.

He added that the child’s condition is certain that embodies the effectiveness of this model, which combines multidisciplinary teams and ensures the best possible care for children with complex medical conditions such as spinal muscles.

A dedicated individual treatment for each case

A consultant for children’s rehabilitation at the Children’s Hospital, Dr. Haitham Al -Bashir, explained that the drug Zolginsma is one of the advanced genetic treatments that give children with spinal muscles atrophy a real opportunity to restore their motor abilities at an early age, saying: “The child receives the certainty of this treatment within a comprehensive treatment plan, under the supervision of medical teams from various specializations in the Jalila Hospital, and we will continue to follow up on her condition, to ensure the achievement of the best possible results, and given For the different nature of each case, we adopt an individual approach that takes into account the special needs of every child. “

The child’s father: I did not taste the taste of sleep from the severity of my joy and our hearts. It was filled with hope

For his part, the father of the child, Ibrahim Kanakir, expressed his deep thanks and gratitude to His Highness Sheikh Mohammed bin Rashid Al Maktoum, to guarantee him by treating his daughter from a rare genetic disease, saying: “The start of the treatment phase today represents a new beginning for a certain life, and a point that turns from fear to hope.”

He added: “I have not tasted the taste of sleep since yesterday from the severity of my joy, and I did not believe that this day would come, and that my daughter will start her treatment journey after everything we went through, and we do not feel that we are outside our homeland, the UAE embraced us as a family, and I stood by our side as no one did.”

He continued: “The initiative of His Highness saved my daughter’s life, and returned hope to our hearts, and we will not forget this beautiful what we have greeted, as the treatment that my child receives is certain that exceeds 7 million dirhams, and we did not have the lowest ability to provide it, had it not been for His Highness.”

He praised the medical cadres at Al -Jalila Children’s Hospital, saying: “Everyone in the hospital deals with certainty as if she was his daughter, this care, mercy and professionalism has relieved us a lot, and we gave us a feeling of safety and containment in a decisive moment of our lives.”

Umm Yaqin: We entered the real hope stage

The mother of the child, Haifa Abdulaziz Farouj, said: “What happened with certainty is beyond description, since the birth of my daughter and I live every day in anxiety and fear, and today I felt that we entered the real hope stage, and I did not imagine that a day came when I see my daughter receiving a treatment from the most rare treatments in the world, and with honor from His Highness Sheikh Mohammed bin Rashid Al Maktoum, who gave us a new life without knowing us, His heart with mercy. “

And she continued: “The UAE had no just a country that we resort to, but a homeland that opened its heart for us, and embraced our daughter in the most difficult moments.”

The mother thanked the medical team at the Jalila Hospital, saying: “Every doctor and nurse here looks at the certainty of the mother’s eye, and this alone is sufficient to feel that my daughter is between honest hands.”