“Burjeel Holding” launches an advanced and rare center of genetic diseases

“Burjeel Holding” announced the launch of an integrated center for rare genetics and diseases inside the Bergel Medical City in Abu Dhabi with the aim of enhancing access to specialized care services for genetic and rare patients at the state and the region.

The opening ceremony – which was held at the headquarters of the Burjeel Medical City – Muhammad Ahmad Al -Yamahi, President of the Arab Parliament and Elchin Bagherov, was attended by the Ambassador of the Republic of Azerbaijan to the state, along with senior officials of Bergel Holding, including Imran Al -Khoury, member of the Board of Directors, John Sonel, CEO and a number of medical and administrative leaders.

Rare diseases are cases of less than every 2000 people and affect between 5% and 10% of the world’s population.

Statistics indicate that there are more than 10,000 rare illnesses globally, 70% of them are caused by genetic causes and the number of people with them in the Middle East and North Africa is estimated at more than 40 million people, many of whom face difficulties in diagnosis and treatment due to the lack of experiences and knowledge and the availability of specialized genetic tests.

Professor Ayman Al -Hattab, a consultant of genetics and genetics, who will lead the center, confirmed that genetic and rare diseases often require accurate diagnoses through genetic tests that may be limited.

He added that our goal is to provide multi -specialized care that includes the medical, psychological, social and rehabilitation aspects, ensuring improving the quality of patients ’life.

The center depends on an integrated care model that includes three units of the “Medical Care Unit” and provides diagnostic and treatment services based on scientific evidence through specialized clinics that include the neurological genetic clinic, the prenatal clinic, the genetic tumor clinic, the metabolic diseases clinic “and the innovative experiment unit that focuses on clinical research to understand the spread of rare diseases and determine the opportunities for innovative genetic treatments, the social support and education unit. By educating patients, care providers and public through educational conferences and seminars.

“We are witnessing a rapid expansion in the clinical trials of rare diseases and we are seeking to ensure that patients benefit from these treatments in early stages, which improves their health results,” said Professor Khaled Muslim, head of the research department in Burjeel Holding, Head of the Innovative Experience Unit at the Center for Genetics and Rare Diseases.

For his part, John Sunil, CEO of Bergel Holding, said that the center of genetics and rare diseases is a qualitative addition to the health care system in the region by providing integrated and high -quality care, as well as supporting scientific research and education in a way that contributes to building distinguished capabilities to deal with these complex cases.